Our mission is to educate healthcare professionals and patients on the SDHB genetic germline mutation as well as its role and impact in this orphan disease, namely Pheochromocytoma and ParagangliomaPlease explore this site further to find out more about these devastating diseases…

Today, we lack effective chemotherapeutic and radiation therapies that can give patients hope, hence we are focused on supporting research which will ultimately lead to effective treatment options and/or a cure of this disease…


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In The News

As the summer comes to an end, we wanted to share with you two events that are planned for 2018.  The annual gala for the SDHB PheoPara Coalition will be held on April 19, 2018 at the Westin Governor Morris Hotel in Morristown, NJ.   

Also, the 5th International Symposium on Pheochromocytoma will be held on May 18th and 19th, 2018 in Bethesda, MD.  Click on upcoming events for more details.

Registration details will be posted soon for both of these events…

 

Research

Scientist with dropper working at the laboratory

The SDHB PheoPara Coalition is active in sponsoring research to advance science in this important and underserved area…

The SDHB PheoPara Coalition provided an educational grant to ISP2017.  This is one of the premier events held in this space and provides many educational and networking opportunities where thought leaders can collaborate and develop strategies to advance the science…

In addition, we provided a research grant to Tufts Medical Center whose goals are to develop and characterize a new SDHB mutant rat model, develop and characterize a new model of SDH-deficient human GIST caused by hereditary SDHB mutation and  build on recent progress utilizing xenografts and cell cultures of SDHB-mutated human PGL’s as new models for preclinical research and testing…

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