Our mission is to educate healthcare professionals and patients on the SDHB genetic germline mutation as well as its role and impact in this orphan disease, namely Pheochromocytoma and ParagangliomaPlease explore this site further to find out more about these devastating diseases…

Today, we lack effective chemotherapeutic and radiation therapies that can give patients hope, hence we are focused on supporting research which will ultimately lead to effective treatment options and/or a cure of this disease…


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In The News

The first annual gala was held by the SDHB PheoPara Coalition at the Parsippany Hilton in New Jersey on April 20th, 2017. 

By all accounts, it was a very successful event and we had over 250 people attend.  The speakers were great and each offered their unique perspective.

Please click on upcoming events for information on future events…

 

Research

Scientist with dropper working at the laboratory

The SDHB PheoPara Coalition is active in sponsoring research to advance science in this important and underserved area…

Given that we are a new organization, our first priority has been to secure donations and funding through our planned events and now we can focus our efforts on and approve grant requests.  More details regarding active projects will be posted in this space in the future…

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