The aim of this organization is to financially support research in the field of paraganglioma and pheochromocytoma, with special regard to malignant paragangliomas caused by the SDHB mutation.  They hope to aid in the development of more efficient treatment, and essentially finding a cure for the disease.


This organization offers support and information for pheochromocytoma and other related conditions.


The Endocrine Society’s mission is to advance excellence in endocrinology and promote its essential and integrative role in scientific discovery, medical practice, and human health.



Mayo Clinic is a nonprofit organization committed to clinical practice, education and research, providing expert, whole-person care to everyone who needs healing.


Investing in future of cancer research.


Worlds largest biomedical library.

Dr. Karel Pacak’s Medical Neuroendocrinology Laboratory & Research


One of the largest centers in the world to properly diagnose and treat patients with Pheochromocytoma and Paraganglioma.


Provides global leadership in scientific research, health, medical education and patient care.