www.paradifference.org

The aim of this organization is to financially support research in the field of paraganglioma and pheochromocytoma, with special regard to malignant paragangliomas caused by the SDHB mutation.  They hope to aid in the development of more efficient treatment, and essentially finding a cure for the disease.

www.pheochromocytoma.org

This organization offers support and information for pheochromocytoma and other related conditions.

www.endocrine.org

The Endocrine Society’s mission is to advance excellence in endocrinology and promote its essential and integrative role in scientific discovery, medical practice, and human health.

 

www.mayoclinic.org

Mayo Clinic is a nonprofit organization committed to clinical practice, education and research, providing expert, whole-person care to everyone who needs healing.